Parenting a Medically Complex Child During a Pandemic
It is not about thriving; some day’s parenthood is just about surviving.
There are so many mixed emotions as we continue through this COVID-19 pandemic. 2020, the year of the infamous coronavirus pandemic. Half of the United States is bunkering down in preparation for the long haul, while the other half are making a mockery of the deadly virus with conspiracy theories. The pandemic is a first for every person, from every country in the world and it doesn’t look like it is going to be disappearing anytime soon. We’re all doing the best we can with what we know. When we know better, we will do better. There is no absolute certainty of what this world will be like once we return to “normal”.
Social Distancing & Self Quarantine.
Social distancing and self-quarantining is a way of life for many like us, while some have never hit the pause a button a day in their life. It is quite literally causing people to go crazy. Without a doubt, the amount of individuals suffering from PTSD is likely to sore through the roof once this pandemic is over.
Boston Children’s Hospital.
Until January 30 2020, the information we knew about the coronavirus came from the news and hospital. Although people were not in a state of panic yet, it was quickly becoming “trending” especially once visitors were recommended to wear masks and take precautions. However, being among the high risk in a children’s hospital kind of prepares you for the worst-case scenario. On February 14, 2020, Tenleigh was discharged due to increasing numbers of hospitalizations, Tenleigh’s respiratory risk factors, and the miraculous overall improvement. February 24, 2020, aka “Judgement Day”, Tenleigh was cleared to go back to the Midwest.
One more day
God himself had to be watching over us that week. After our successful appointment with Dr. Emans, we spent the evening reflecting on the last two months living in Boston. Although many would assume that we would be eagerly packing the Dodge Caravan, the three of us were trying to milk it for just one more day in the city. I mean what could one more day hurt, right?
That one day was Boston’s Super spread of the coronavirus outbreak less than a ½ mile from our apartment. Individuals from all over the world came together for a conference meeting for Biogen. In summary, within two days the virus infected approximately 100 people that travelled to their homes, kissed their loved ones and infected their communities. Overall, the Biogen conference quickly became one of the first hot spots in the united states. Luckily for us, that one day was better spent curled up in the jammed packed van.
During our first month home, there was an uncertainty lingering that we could have already been infected, especially due to all of us experiencing colds back in February. As the days turned into weeks and guidelines were put in place, the anxiety eased but the precautions remained. We have not seen some of our family members since December 2019 and know that it will be even longer for us than most due to being high risk. Although we have not personally witnessed the trauma of living with COVID-19, the impact is still indefinite as we hear the horror stories develop worldwide.