Tenleighs Troops
Tenleighs Troops
Her Fight Is Our Fight!
Tenleighs troops Platform: Raise awareness to spondylocostal dysostosis, klippel — feil syndrome, and thoracic insufficiency syndrome.
tenleighs troops disclaimer: The content is NOT intended to be a substitute for professional medical advice, diagnosis, or treatment. ALWAYS seek the advice of your physician or other qualified health providers with any questions you may have regarding a medical condition.
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Spondylocostal Dysostosis, Klippel-Feil, & Thoracic Insufficiency Syndrome:
Spondylocostal Dysostosis:
a.k.a. Jarcho-Levin Syndrome.
OVERALL, No incidence figures have been reported in literature.
- A rare congenital condition.
- Multiple segmentation defects of the vertebrae (M-SDV) along with rib abnormalities.
- Congenital scoliosis.
- Short-trunk compared to height with a short neck.
Klippel-Feil Syndrome:
- Congenital condition
- Abnormal fusions of two or more in the cervical vertebrae
- Low hairline at the back of the neck.
- Limited range of motion in the neck.
Thoracic Insufficiency Syndrome:
Defined by Dr. Campbell in 1993
- Complex condition with the inability to support normal breathing and lung growth.
- Congenital scoliosis.
- Kyphosis
- Fusions or Absent ribs
- Genetic causes
- Lung Disorder
Spondylocostal Dysostosis & Thoracic Insufficiency Syndrome Treatment.
The Vertical Expandable Prosthetic Titanium Rib (VEPTR):
Dr. Robert Campbell Jr.: Inventor of the VEPTR device as a treatment for Thoracic Insufficiency Syndrome
Campbell RM. , Smith MD, Mayes TC, Mangos JA, Willey-Cour and, DB, Surber, J. The treatment of thoracic insufficiency syndrome associated with scoliosis and fused ribs, Presented at the American Association of Orthopaedic Surgery, March 2000, Orlando, FL.
The Titanium Rib Project:
Dr. Smith & Dr. Campbell’s worked together for 13 years to perfect the VEPTR and the surgical technique. The VEPTR rod finally gained FDA approval in September 2004, becoming the first major advancement in spine instrumentation treatment since Dr. Harrington of Houston, Texas, created the Harrington Rod in 1962.
Conditions that the VEPTR has been used to treat:
- Jarcho-Levin
- Spondylocostal dysostosis
- spondylothoracic dysostosis
- Jeunes Syndrome
- VATER
- VACTERL
- Congenital scoliosis
- Missing or fused ribs
- Missing or malformed vertebra
- Kyphosis.
Before & After X-Rays Halo Gravity Traction 
Before & After X-Rays Halo Gravity Traction
Treatment of Thoracic Insufficiency Syndrome (TIS) & Congenital Spinal Deformities:
Wedge Thoracostomies & VEPTR Insertion:
Viewer Discretion Advised.
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Tenleigh’s Troops
Scoliosis Awareness
Author Recent Posts Follow meHaylsCreator & Blogger at Tenleigh’s TroopsHaylee is the creator of Tenleigh’s Troops to raise awareness for spondylocostal dysostosis and encouraging parental advocacy. Haylee work history includes… Continue reading Tenleighs Troops
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Supporting Parents of Medically Complex Children
Supporting Parents of Medically Complex Children
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Creator & Blogger at Tenleigh's Troops
Haylee is the creator of Tenleigh's Troops to raise awareness for spondylocostal dysostosis and encouraging parental advocacy. Haylee work history includes Pediatrics Nurse Technician at HSHS St. John's Children's Hospital along with 500 hours of clinical experience.
Latest posts by Hayls (see all)
- Scoliosis Awareness - June 15, 2020
- Supporting Parents of Medically Complex Children - June 6, 2020
- Haylee’s Halo Hospitalization Hacks: - May 17, 2020
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