Homepage
Tenleigh’s Troops
Our backs tell stories no books have the spine to carry.
Raising Awareness
Advocate, Educate, Embrace, Support, Love
4th place float winners
Tenleigh’s Troops: The Future is Now… Fight for it!!
Spondylocostal Dysostosis a.k.a. Jarcho-Levin Syndrome.
- A rare congenital condition.
- Multiple segmentation defects of the vertebrae (M-SDV) along with rib abnormalities.
- Congenital scoliosis.
- Short-trunk compared to height with a short neck.


Klippel-Feil Syndrome
- Congenital condition
- Abnormal fusions of two or more in the cervical vertebrae
- Low hairline at the back of the neck.
- Limited range of motion in the neck.

Thoracic Insufficiency Syndrome
- Complex condition with the inability to support normal breathing and lung growth.
- Congenital scoliosis.
- Kyphosis
- Fusions or Absent ribs
- Genetic causes
- Lung Disorder



Before & After X-Rays Halo Gravity Traction Before & After X-Rays Halo Gravity Traction
Donations to help the family with medical expenses can be made at: http://www.gofundme.com/tenleighjoy
accomodate advice advocate boston burden chest congenital scoliosis covid-19 dwarfism early onset scoliosis educate expert family blog friends growing rods halo gravity-traction health her fight is our fight idiopathic scoliosis inclusion jarcho-levin syndrome kyphosis love lung disease lung growth lungs magec magec rods medically complex child medically complex children neuromuscular scoliosis normalcy pandemic parental traumatic stress disorder parenting positive feedback post-traumatic stress disorder postive feedback restrictive lung disease scoliosis spondylocostal dysostosis tenleigh thoracic insufficiency syndrome veptr veptr rods
June is Scoliosis Awareness Month
June is Scoliosis Awareness Month. June is Scoliosis Awareness Month! Wear green National Scoliosis Awareness Month: National Scoliosis Awareness Month occurs yearly in June to highlight the growing need for education, early detection, and awareness about scoliosis and its prevalence within the community. The campaign also unites scoliosis patients, families, physicians, clinicians, institutions, and related…
Supporting Parents of Medically Complex Children
Supporting Parents of Medically Complex Children
