Tenleigh's Troops


Tenleigh’s Troops

Our backs tell stories no books have the spine to carry.

Raising Awareness

Advocate, Educate, Embrace, Support, Love

Spondylocostal Dysostosis a.k.a. Jarcho-Levin Syndrome.

  • A rare congenital condition.
  • Multiple segmentation defects of the vertebrae (M-SDV) along with rib abnormalities.
  • Congenital scoliosis.
  • Short-trunk compared to height with a short neck.

Klippel-Feil Syndrome

  • Congenital condition
  • Abnormal fusions of two or more in the cervical vertebrae
  • Low hairline at the back of the neck.
  • Limited range of motion in the neck.

Thoracic Insufficiency Syndrome

  • Complex condition with the inability to support normal breathing and lung growth.
  • Congenital scoliosis.
  • Kyphosis
  • Fusions or Absent ribs
  • Genetic causes
  • Lung Disorder

Donations to help the family with medical expenses can be made at: http://www.gofundme.com/tenleighjoy

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