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Tenleigh’s Troops
Our backs tell stories no books have the spine to carry.
Raising Awareness
Advocate, Educate, Embrace, Support, Love
4th place float winners
Tenleigh’s Troops: The Future is Now… Fight for it!!
Spondylocostal Dysostosis a.k.a. Jarcho-Levin Syndrome.
- A rare congenital condition.
- Multiple segmentation defects of the vertebrae (M-SDV) along with rib abnormalities.
- Congenital scoliosis.
- Short-trunk compared to height with a short neck.
Klippel-Feil Syndrome
- Congenital condition
- Abnormal fusions of two or more in the cervical vertebrae
- Low hairline at the back of the neck.
- Limited range of motion in the neck.
Thoracic Insufficiency Syndrome
- Complex condition with the inability to support normal breathing and lung growth.
- Congenital scoliosis.
- Kyphosis
- Fusions or Absent ribs
- Genetic causes
- Lung Disorder
Tenleigh’s Last Surgery
Tenleigh’s last surgery. At Tenleigh’s last surgery in Boston, Dr. Emans and Dr. Hogue told us she was nearing the end of her surgery journey, and they gave us two options. We could do a very intense surgery, which involves cutting the lumbar spine to correct her curve more, a fusion, and permanent rods. That…
June is Scoliosis Awareness Month
June is Scoliosis Awareness Month. June is Scoliosis Awareness Month! Wear green National Scoliosis Awareness Month: National Scoliosis Awareness Month occurs yearly in June to highlight the growing need for education, early detection, and awareness about scoliosis and its prevalence within the community. The campaign also unites scoliosis patients, families, physicians, clinicians, institutions, and related…
